Stephen Robinson, 71, who has the agonising brittle bone disease, attended October’s gathering in Manchester in a bid to secure better treatment for fellow sufferers.
But after hours of standing and walking around he admits it was a painful “waste of time”.
Mr Robinson was part of a delegation from the Royal Osteoporosis Society. Along with the Sunday Express we have launched the Better Bones campaign.
It demands an extra £30million a year for specialist bone clinics which detect and treat the disease.
And it is calling for all over-50s to have access to these Fracture Liasion Services along with a dedicated bone fracture tsar to oversee care in each UK nation.
Research shows the measures would prevent 74,000 fractures over five years, saving the NHS £665million.
Mr Robinson, from Northallerton, North Yorkshire, who was forced to give up work due to the disease, still struggled to get a diagnosis despite agonising back pain.
In 2017, after paying more than £3,000 to a private clinic, he was told he had osteoporosis.
He has suffered 10 fractures in his spine, his most recent injury being at the start of this month.
Mr Robinson wrote to his local MP – Prime Minister Rishi Sunak – calling for a meeting, which has not yet been granted. The area does not have a fracture liaison clinic.
Last August, Mental Health Minister Maria Caulfield told the Sunday Express she would “explore setting up more fracture liaison
services”. A package of measures was also promised to come in the Autumn Statement. Both pledges were broken.
Mr Robinson said: “I went to the conference and we put our campaign forward to people on various panels. It looked promising.
“There were lots of statements, lots of promises, and they said there’d be something in the Statement. So we left feeling quite happy.
“Then I watched the mini-Budget and came out thinking, ‘What a waste of time that was’.”
But Mr Robinson said he will not stop campaigning. “I will never get better, but I don’t want anyone to go through what I have,” he said.
“If I’d had an FLS nearby, maybe I’d never have gone through so many injuries. It can be hard to stay hopeful.”
ROS chief executive Craig Jones said: “People like Stephen have worked tirelessly to make a case that has been endorsed by everyone bar ministers.
“Campaigners like Stephen aren’t doing it for selfish reasons – they’re standing up for those in their 40s and 50s who are coming next, to get them the treatments they were denied.
“Stephen’s MP is the busiest in the country, but he’s the only elected representative he’s got.
“I believe Rishi Sunak is a politician who sees the importance of staying in touch with the people, so I hope he’ll give his constituent 20 minutes of his time.”
A Department of Health and Social Care spokesperson said: “Our Major Conditions Strategy will look at how we can better manage and treat conditions and we’ll work with NHS England to explore supporting the provision of fracture liaison services.”
